we made it into Charleston around 7 last night. There was some paperwork to do, rules to know and a tour of the 4 home Hope House. All 4 of the houses are interconnected with walkways and there are 18 rooms for people who need a place to stay. There is a shuttle service to Roper or the Childrens Hospital. Thankfully there is wifi here, but my xbox so far has been unable to connect to xbox live due their security.
The hope lodge is this huge place and we are lucky to have room 13 which is set apart from all the other rooms upstairs. We have our own bathroom and shower as well as kitchen space.
My only issue as Ive gotten closer to tomorrows surgery is-I cannot sleep for an extended period of time. By that I mean I woke wide awake thinking it was time to get up ...it was 1045pm! I woke up again at 1215, 230 and 314...Its 430am now and Ive spent my morning prowling around the lodge..I piddled around on a puzzle for awhile, followed by pilfering their book collection. I settled on a Dean Koontz book, but then discovered Id much rather commit to something much shorter so I dumped the book for Consumers Digest. I got peckish so I got a huge strawberry muffin, decided 4am was the PERFECT time to try chocolate Ensure (they have a cooler full of it, high protein for us cancer kids) and I sat out on the enclosed deck reading about who had the best cell phone service. It turns out not only do I have the cancer, I also have the 2nd worst cell phone provider...It completely threw me off. Or maybe it was the Ensure. I finished my muffin, wondered how much longer I could prowl around without having to make conversation and realized apparently I am the only cancer kid currently staying here who has the I_cannot_sleep_when_I_am_nervous_ side effect.
O well, maybe I actually CAN sleep but I secretly enjoy having all this quiet time..ANYWAY, Today I have several doctor appointments, including an angiogram CT and a lymphscintigraphy (which I prollly didnt spell RIGHT, but hey...I think its in the cancer handbook that I can tee-totally get by with misspellling werds)
Tomorrow morning, this all changes. Ive got this whole reticent vibe going-have you heard Colin Hayes "waiting for my real life to begin" ? Give it a listen, just for me.
The hope lodge is this huge place and we are lucky to have room 13 which is set apart from all the other rooms upstairs. We have our own bathroom and shower as well as kitchen space.
My only issue as Ive gotten closer to tomorrows surgery is-I cannot sleep for an extended period of time. By that I mean I woke wide awake thinking it was time to get up ...it was 1045pm! I woke up again at 1215, 230 and 314...Its 430am now and Ive spent my morning prowling around the lodge..I piddled around on a puzzle for awhile, followed by pilfering their book collection. I settled on a Dean Koontz book, but then discovered Id much rather commit to something much shorter so I dumped the book for Consumers Digest. I got peckish so I got a huge strawberry muffin, decided 4am was the PERFECT time to try chocolate Ensure (they have a cooler full of it, high protein for us cancer kids) and I sat out on the enclosed deck reading about who had the best cell phone service. It turns out not only do I have the cancer, I also have the 2nd worst cell phone provider...It completely threw me off. Or maybe it was the Ensure. I finished my muffin, wondered how much longer I could prowl around without having to make conversation and realized apparently I am the only cancer kid currently staying here who has the I_cannot_sleep_when_I_am_nervous_ side effect.
O well, maybe I actually CAN sleep but I secretly enjoy having all this quiet time..ANYWAY, Today I have several doctor appointments, including an angiogram CT and a lymphscintigraphy (which I prollly didnt spell RIGHT, but hey...I think its in the cancer handbook that I can tee-totally get by with misspellling werds)
Tomorrow morning, this all changes. Ive got this whole reticent vibe going-have you heard Colin Hayes "waiting for my real life to begin" ? Give it a listen, just for me.
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